| 紀錄類型: |
書目-電子資源
: Monograph/item
|
| 杜威分類號: |
362.10285 |
| 書名/作者: |
Communicating rare diseases and disorders in the digital age/ edited by. Liliana Vale Costa and Sónia Oliveira. |
| 其他作者: |
Costa, Liliana Vale. |
| 出版者: |
Hershey, Pennsylvania : : IGI Global,, 2020. |
| 面頁冊數: |
1 online resource (xxiii, 412 p.) |
| 附註: |
"Premier Reference Source" -- Cover. |
| 標題: |
Rare diseases - Information resources. |
| 標題: |
Medical informatics. |
| 標題: |
Communication in medicine. |
| 標題: |
Social media in medicine. |
| ISBN: |
9781799820895 (ebk.) |
| ISBN: |
9781799820888 (hbk.) |
| 書目註: |
Includes bibliographical references and index. |
| 內容註: |
Chapter 1. Talking about rare diseases: a compendium on rare diseases and online news -- Chapter 2. Health-related communication and rare diseases: a passport for the patient journey -- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases -- Chapter 4. Digital media in rare diseases or "knowledge is power": the role of eurordis in creating awareness and diagnosing rare diseases -- Chapter 5. Public media coverage of rare diseases and disorders: the case of Spanish public broadcasting corporation -- Chapter 6. Representation of patients with rare diseases in Spanish media -- Chapter 7. Networks in rare diseases: identities, partnership, and advocacy in Brazil -- Chapter 8. Challenges of parents with children with rare diseases in Portugal: a relational perspective -- Chapter 9. Neuropsychiatry in late onset tay-sachs disease: key features and possible etiology of psychosis -- Chapter 10. Portraying rare and misdiagnosed diseases in movies: a content analysis, 1980-2018 -- Chapter 11. How is the administrator's experience in managing health facebook groups?: the impact of social media in patients with IBD. |
| 摘要、提要註: |
"This book explores the use of computer-mediated communication in rare diseases and disorders"-- |
| 電子資源: |
http://services.igi-global.com/resolvedoi/resolve.aspx?doi=10.4018/978-1-7998-2088-8 |